The Impact of Environmental Factors on Families with Disabilities as an Object of Structural Modeling
Abstract
This article examines the socio-economic situation of families with children with disabilities, who are considered vulnerable social groups in global social policy. The purpose of the paper is to assess the set of constraints faced by families with children with disabilities in Kazakhstan and the factors, including environmental factors, that have a significant impact on them. The authors use a sociological survey of respondents in five regions of Kazakhstan and subsequently process the results using statistical methods. The survey is based on a methodological approach based on the identification of four types of constraints: direct costs, indirect losses/costs, assessment of the ability to find a job, and assessment of the ability to maintain a parent's health. The authors conduct structural modeling using the PLS-PM model, in which four types of constraints are set as dependent variables. The model allowed eight hypotheses to be confirmed, of which six identify significant factors and the other two reflect the relationships among the dependent variables in the model.
References
[1] Anderson, L. 2018. Family and Individual Needs for Disability Supports. (v.2) FINDS Community Report 2017. Minnesota: Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota, 25p.
[2] Bourke-Taylor H., Cotter C. and Stephan R. 2018. Young children with cerebral palsy: families self-reported equipment needs and out-of-pocket expenditure. Child: Care, Health and Development, 40(5): 654-662. DOI:10.1111/cch.12098
[3] Chaplinskaja, E.V. 2018. Social rehabilitation of families with disabled children, as a technology of social work. Science and modernity, 13(21): 108-113
[4] Coleridge, P. 2017. Disabled people and ‘employment’ in the majority world: policies and realities. In: Roulstone A., Barnes C., eds. Working futures? Disabled people, policy and social inclusion. Bristol, Policy Press, 368p.
[5] Cullinan, J., Gannon, B. and Lyons, S. 2021. Estimating the extra cost of living for people with disabilities. Health Economics, 20(5): 582-599.
[6] Daly, M. 2020. Shifts in family policy in the UK under New Labour. Journal of European Social Policy, 11(20): 433–443.
[7] Daly, M. and Grace, K. 2018. Families and Poverty: Everyday Life on a Low Income. Bristol: Policy Press. 272p.
[8] Emerson, E. 2017. Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50 (12): 862-873. DOI: 10.1111/j.1365-2788.2006.00900.x
[9] Ferguson A., Penney R. and Solo-Gabriele H. 2017. A Review of the Field on Children’s Exposure to Environmental Contaminants: A Risk Assessment Approach. Int. J. Environ. Res. Public Health, 14(3): 265-273. DOI: 10.3390/ijerph14030265
[10] Giulio, P., Philipov, D. and Jaschinski, I. 2017. Families with disabled children in different European countries. Families and Societies. Working Paper Series, 14(23): 11-24. Available at: http://www.familiesandsocieties.eu/wp-content/uploads/2017/12/WP23GiulioEtAl.pdf
[11] Glidden, L. 2017. What we do not know about families with children who have developmental disabilities: Questionnaire on Resources and Stress as a case study. American Journal of Mental Retardation, 97(5): 481–495.
[12] Hartley, S. and Newton, C. 2019. Children with developmental disabilities in the majority of the world. Neurodevelopmental disabilities: clinical and scientific foundations, 1(1): 70-84.
[13] Helldén, D., et al. 2021. Climate change and child health: a scoping review and an expanded conceptual framework. Lancet Public Health, 5(12): e164–e175. DOI: 10.1016/S2542-5196(20)30274-6
[14] La Placa, V. and Corlyon, J. 2018. Unpacking the Relationship between Parenting and Poverty: Theory, Evidence and Policy. Social Policy and Society, 15(1): 11-28. DOI: 10.1017/S1474746415000111
[15] Lanzoni A., et al. 2019. Advancing human health risk assessment. Sustainability, 51(17): 712-719. DOI:https://doi.org/10.2903/j.efsa.2019.e170712
[16] Lindqvist, R. 2020. Swedish Disability Policy: From Universal Welfare to Civil Rights? European Journal of Social Security, 2(4): 399–418. DOI: 10.1023/A:1011532222021
[17] Loprest, P. and Davidoff, A. 2017. How Children with Special Health Care Needs Affect the Employment Decisions of Low-Income Parents. Maternal and Child Health Journal, 8(3): 171–182. DOI:10.1023/B:MACI.0000037650.83572.81
[18] Lukemeyer, A., Meyers, M. and Smeeding, T. 2020. Expensive Children in Poor Families: Out-of-Pocket Expenditures for the Care of Disabled and Chronically Ill Children in Welfare Families. Journal of Marriage and Family, 62(2): 399-415. DOI: 10.1111/j.1741-3737.2000.00399.x
[19] Mastorci F., Linzalone, N., Ait-Ali, L. and Pingitore, A. 2021. Environment in Children’s Health: A New Challenge for Risk Assessment. Int J Environ Res Public Health, 18(19): 445-452. DOI:10.3390/ijerph181910445
[20] Maulik, P. and Darmstadt, G. 2017. Childhood disability in low- and middle-income countries: over view of screening, prevention, services, legislation, and epidemiology. Pediatrics, 120:Suppl 1S1-S55. DOI:10.1542/peds.2017-0043B
[21] Mitra, S. 2017. Extra costs of living with a disability: A review and agenda for research. Disability and Health Journal, 10(4): 475-484. DOI: http://dx.DOI.org/10.1016/j.dhjo.2017.04.007
[22] Okon M., Henderson, A., Kinnear, D. and Cooper, Sally-Ann. 2019. Trends and variations in per capita expenditure on adult intellectual disabilities health and social care across Scotland, and by urban/rural class. Journal of Applied Research in Intellectual Disabilities, 32(1): 121-130. DOI: 10.1111/jar.12514
[23] Olsson, M. and Hwang, C. 2017. Well-being, involvement in paid work and division of child-care in parents of children with intellectual disabilities in Sweden. Journal of Intellectual Disability Research, 50(12): 963-969. DOI: 10.1111/j.1365-2788.2006.00930.x
[24] Patton, G.C., et al. 2020. Health of the world’s adolescents: A synthesis of internationally comparable data. Lancet, 379: 1665–1675. DOI: 10.1016/S0140-6736(12)60203-7
[25] Penne, T., Hufkens, T., Goedemé, T. and Storms, B. 2020. To what extent do welfare states compensate for the cost of children? The joint impact of taxes, benefits and public goods and services. Journal of European Social Policy, 30(1): 79–94. DOI: https://doi.org/10.1177/0958928719868458
[26] Phoenix, M., Reitzel, M., Martens, R. and Lebsack, J. 2021. Reconceptualizing the Family to Improve Inclusion in Childhood Disability Research and Practice. Sustainability, 2(50): 580-594. DOI:https://doi.org/10.3389/fresc.2021.710580
[27] Preston, G. 2017. Families with disabled children, benefits and poverty. The Journal of Poverty and Social Justice, 14(1): 39-43.
[28] Rimmerman, A. 2018. Family policy and disability. Cambridge University Press, 226p.
[29] Salvatore, Ch. and Wolbring, G. 2021. Children and Youth Environmental Action: The Case of Children and Youth with Disabilities. Sustainability, 13(17): 950-961. DOI: https://doi.org/10.3390/su13179950
[30] Simplican, S.C. 2018. Defining social inclusion of people with intellectual and developmental disabilities: An ecological model of social networks and community participation. Research in Developmental Disabilities, 11(38):18-29. DOI: https://doi.org/10.1016/j.ridd.2018.10.008
[31] Stabile, M. and Allin, S. 2017. The economic costs of childhood disability. Future Child, 22(1): 65-96.
[32] Temirbayeva, D.M. 2020. Classification of models and mechanisms of family policy in developed countries. Bulletin of the Karaganda University, Economy Series, 3: 201-208.
[33] Turlubekova, M.B. and Bugubayeva, R.O. 2021. Inclusive education in Kazakhstan: analysis of the organizing process and the possibility of its further development. Central Asian Economic Review, (3): 89-109. DOI:https://doi.org/10.52821/2224-5561-2021-3-89-109
[34] Official resource Bulletin of Children with disability. 2018. The Future of Children. 22(1): Princeton Booking, Washington D.C. 222p.
[35] Official resource of Bureau of National Statistics of the Agency for Strategic Planning and Reforms of the Republic of Kazakhstan website. Available at: https://bala.stat.gov.kz/chislennost-detej-invalidov-ot-0-do-17-let-vklyuchitelno/
[36] Official resource of CIS Interstate Statistical Committee of the Commonwealth of Independent States website. Summary of the Statistical Practice of the CIS and Other Countries of the World on Disability Issues. Available at: http://www.cisstat.org/life_quality/obzor_inv_2020.pdf
[37] Official resource of Family Policy in the 28 EU Member States. Taskforce on European and International Relations and Cooperation Country Overview. Available at: https://www.caf.fr/sites/default/files/cnaf/Documents/international/fiches%20pays/Compil%20fiches%20pays%20pays%20UE_01%202018_English.pdf
[38] Official resource of Statistics Committee of the Ministry of National Economy of the Republic of Kazakhstan Available at: https://bala.stat.gov.kz/
[39] Official resource of the Committee on Statistics of the Republic of Kazakhstan for 2012-2020. Available at: www.stat.gov.kz
[40] World report on disability. 2011.World Health Organization. The World Bank – 350p. Available at: https://www.who.int/disabilities/world_report/2011/report.pdf
[2] Bourke-Taylor H., Cotter C. and Stephan R. 2018. Young children with cerebral palsy: families self-reported equipment needs and out-of-pocket expenditure. Child: Care, Health and Development, 40(5): 654-662. DOI:10.1111/cch.12098
[3] Chaplinskaja, E.V. 2018. Social rehabilitation of families with disabled children, as a technology of social work. Science and modernity, 13(21): 108-113
[4] Coleridge, P. 2017. Disabled people and ‘employment’ in the majority world: policies and realities. In: Roulstone A., Barnes C., eds. Working futures? Disabled people, policy and social inclusion. Bristol, Policy Press, 368p.
[5] Cullinan, J., Gannon, B. and Lyons, S. 2021. Estimating the extra cost of living for people with disabilities. Health Economics, 20(5): 582-599.
[6] Daly, M. 2020. Shifts in family policy in the UK under New Labour. Journal of European Social Policy, 11(20): 433–443.
[7] Daly, M. and Grace, K. 2018. Families and Poverty: Everyday Life on a Low Income. Bristol: Policy Press. 272p.
[8] Emerson, E. 2017. Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50 (12): 862-873. DOI: 10.1111/j.1365-2788.2006.00900.x
[9] Ferguson A., Penney R. and Solo-Gabriele H. 2017. A Review of the Field on Children’s Exposure to Environmental Contaminants: A Risk Assessment Approach. Int. J. Environ. Res. Public Health, 14(3): 265-273. DOI: 10.3390/ijerph14030265
[10] Giulio, P., Philipov, D. and Jaschinski, I. 2017. Families with disabled children in different European countries. Families and Societies. Working Paper Series, 14(23): 11-24. Available at: http://www.familiesandsocieties.eu/wp-content/uploads/2017/12/WP23GiulioEtAl.pdf
[11] Glidden, L. 2017. What we do not know about families with children who have developmental disabilities: Questionnaire on Resources and Stress as a case study. American Journal of Mental Retardation, 97(5): 481–495.
[12] Hartley, S. and Newton, C. 2019. Children with developmental disabilities in the majority of the world. Neurodevelopmental disabilities: clinical and scientific foundations, 1(1): 70-84.
[13] Helldén, D., et al. 2021. Climate change and child health: a scoping review and an expanded conceptual framework. Lancet Public Health, 5(12): e164–e175. DOI: 10.1016/S2542-5196(20)30274-6
[14] La Placa, V. and Corlyon, J. 2018. Unpacking the Relationship between Parenting and Poverty: Theory, Evidence and Policy. Social Policy and Society, 15(1): 11-28. DOI: 10.1017/S1474746415000111
[15] Lanzoni A., et al. 2019. Advancing human health risk assessment. Sustainability, 51(17): 712-719. DOI:https://doi.org/10.2903/j.efsa.2019.e170712
[16] Lindqvist, R. 2020. Swedish Disability Policy: From Universal Welfare to Civil Rights? European Journal of Social Security, 2(4): 399–418. DOI: 10.1023/A:1011532222021
[17] Loprest, P. and Davidoff, A. 2017. How Children with Special Health Care Needs Affect the Employment Decisions of Low-Income Parents. Maternal and Child Health Journal, 8(3): 171–182. DOI:10.1023/B:MACI.0000037650.83572.81
[18] Lukemeyer, A., Meyers, M. and Smeeding, T. 2020. Expensive Children in Poor Families: Out-of-Pocket Expenditures for the Care of Disabled and Chronically Ill Children in Welfare Families. Journal of Marriage and Family, 62(2): 399-415. DOI: 10.1111/j.1741-3737.2000.00399.x
[19] Mastorci F., Linzalone, N., Ait-Ali, L. and Pingitore, A. 2021. Environment in Children’s Health: A New Challenge for Risk Assessment. Int J Environ Res Public Health, 18(19): 445-452. DOI:10.3390/ijerph181910445
[20] Maulik, P. and Darmstadt, G. 2017. Childhood disability in low- and middle-income countries: over view of screening, prevention, services, legislation, and epidemiology. Pediatrics, 120:Suppl 1S1-S55. DOI:10.1542/peds.2017-0043B
[21] Mitra, S. 2017. Extra costs of living with a disability: A review and agenda for research. Disability and Health Journal, 10(4): 475-484. DOI: http://dx.DOI.org/10.1016/j.dhjo.2017.04.007
[22] Okon M., Henderson, A., Kinnear, D. and Cooper, Sally-Ann. 2019. Trends and variations in per capita expenditure on adult intellectual disabilities health and social care across Scotland, and by urban/rural class. Journal of Applied Research in Intellectual Disabilities, 32(1): 121-130. DOI: 10.1111/jar.12514
[23] Olsson, M. and Hwang, C. 2017. Well-being, involvement in paid work and division of child-care in parents of children with intellectual disabilities in Sweden. Journal of Intellectual Disability Research, 50(12): 963-969. DOI: 10.1111/j.1365-2788.2006.00930.x
[24] Patton, G.C., et al. 2020. Health of the world’s adolescents: A synthesis of internationally comparable data. Lancet, 379: 1665–1675. DOI: 10.1016/S0140-6736(12)60203-7
[25] Penne, T., Hufkens, T., Goedemé, T. and Storms, B. 2020. To what extent do welfare states compensate for the cost of children? The joint impact of taxes, benefits and public goods and services. Journal of European Social Policy, 30(1): 79–94. DOI: https://doi.org/10.1177/0958928719868458
[26] Phoenix, M., Reitzel, M., Martens, R. and Lebsack, J. 2021. Reconceptualizing the Family to Improve Inclusion in Childhood Disability Research and Practice. Sustainability, 2(50): 580-594. DOI:https://doi.org/10.3389/fresc.2021.710580
[27] Preston, G. 2017. Families with disabled children, benefits and poverty. The Journal of Poverty and Social Justice, 14(1): 39-43.
[28] Rimmerman, A. 2018. Family policy and disability. Cambridge University Press, 226p.
[29] Salvatore, Ch. and Wolbring, G. 2021. Children and Youth Environmental Action: The Case of Children and Youth with Disabilities. Sustainability, 13(17): 950-961. DOI: https://doi.org/10.3390/su13179950
[30] Simplican, S.C. 2018. Defining social inclusion of people with intellectual and developmental disabilities: An ecological model of social networks and community participation. Research in Developmental Disabilities, 11(38):18-29. DOI: https://doi.org/10.1016/j.ridd.2018.10.008
[31] Stabile, M. and Allin, S. 2017. The economic costs of childhood disability. Future Child, 22(1): 65-96.
[32] Temirbayeva, D.M. 2020. Classification of models and mechanisms of family policy in developed countries. Bulletin of the Karaganda University, Economy Series, 3: 201-208.
[33] Turlubekova, M.B. and Bugubayeva, R.O. 2021. Inclusive education in Kazakhstan: analysis of the organizing process and the possibility of its further development. Central Asian Economic Review, (3): 89-109. DOI:https://doi.org/10.52821/2224-5561-2021-3-89-109
[34] Official resource Bulletin of Children with disability. 2018. The Future of Children. 22(1): Princeton Booking, Washington D.C. 222p.
[35] Official resource of Bureau of National Statistics of the Agency for Strategic Planning and Reforms of the Republic of Kazakhstan website. Available at: https://bala.stat.gov.kz/chislennost-detej-invalidov-ot-0-do-17-let-vklyuchitelno/
[36] Official resource of CIS Interstate Statistical Committee of the Commonwealth of Independent States website. Summary of the Statistical Practice of the CIS and Other Countries of the World on Disability Issues. Available at: http://www.cisstat.org/life_quality/obzor_inv_2020.pdf
[37] Official resource of Family Policy in the 28 EU Member States. Taskforce on European and International Relations and Cooperation Country Overview. Available at: https://www.caf.fr/sites/default/files/cnaf/Documents/international/fiches%20pays/Compil%20fiches%20pays%20pays%20UE_01%202018_English.pdf
[38] Official resource of Statistics Committee of the Ministry of National Economy of the Republic of Kazakhstan Available at: https://bala.stat.gov.kz/
[39] Official resource of the Committee on Statistics of the Republic of Kazakhstan for 2012-2020. Available at: www.stat.gov.kz
[40] World report on disability. 2011.World Health Organization. The World Bank – 350p. Available at: https://www.who.int/disabilities/world_report/2011/report.pdf
Published
2022-06-03
How to Cite
PRITVOROVA, Tatyana et al.
The Impact of Environmental Factors on Families with Disabilities as an Object of Structural Modeling.
Journal of Environmental Management and Tourism, [S.l.], v. 13, n. 3, p. 619-632, june 2022.
ISSN 2068-7729.
Available at: <https://journals.aserspublishing.eu/jemt/article/view/6986>. Date accessed: 22 dec. 2024.
doi: https://doi.org/10.14505/jemt.v13.3(59).02.
Section
Article
Copyright© 2024 The Author(s). Published by ASERS Publishing 2024. This is an open access article distributed under the terms of CC-BY 4.0 license.